No consensus on when, how, by whom — even if — Alzheimer’s patients are told of their disease

Photo courtesy of Alzheimer’s Association, St. Louis ChapterA WUSTL psychologist says there is little consensus among doctors when it comes to disclosing a dementia diagnosis to patients and their caregivers.To tell or not to tell, that is the question. Should Alzheimer’s disease patients be told of the diagnosis? If so, when, how and by whom? Brian D. Carpenter, Ph.D., an assistant professor of psychology in Arts & Sciences at Washington University in St. Louis, conducted a review of related study literature that shows there is little consensus among clinicians on the issue of disclosing a dementia diagnosis and great room for much more research. Carpenter’s review, done with research assistant Jennifer Dave, was published in the April 2004 issue of The Gerontologist. “If contemporary debate and practice are any indication, there is no consensus on these matters,” Carpenter says in the article “Disclosing a Dementia Diagnosis: A Review of Opinion and Practice, and a Proposed Research Agenda.”