special needs children

In the United States, caring for a child with special health care needs usually means higher medical expenses for a family — particularly for low-income families, who spend a disproportionally large share of their income on their child’s care. Yet the amount of financial burden for these families also depends on their state of residence, says Paul T. Shattuck, Ph.D., professor of social work at Washington University in St. Louis. “The percentage of low-income families in a given state with out-of-pocket expenses that exceeded 3 percent of their income varied considerably according to state and ranged from 5 percent to 25. 8 percent (District of Columbia and Montana, respectively).” Video available.

Therapies, rehabilitation and specialty medical care are just a few of the extra costs parents face when raising children with special needs. In a new study published in Pediatrics, Paul T. Shattuck, Ph.D., professor of social work, found that families with similar demographics and nature of their children’s special needs have different out-of-pocket health expenditures depending on the state in which they live.

In a new study published in the journal Pediatrics, Paul T. Shattuck, Ph.D., professor of social work at Washington University in St. Louis, found that families with similar demographics and nature of their children’s special needs have different out-of-pocket health expenditures depending on the state in which they live. “This is one of the few studies that focuses on families’ costs when caring for children with special needs, rather than the overall cost for society as a whole,” he says. Shattuck notes that wealthier states tend to have a lower average extra cost for caring for a child with special needs. “At the low end, families in Massachusetts paid an average of $560 for out-of-pocket medical expenses,” he says. “At the high end, families in Georgia shouldered an average of $970 in additional care expenses.” Editor’s note: Video and a complete rankings table are available.